Readers: I’ve noticed a dramatic increase in traffic to my posts on Prader-Willi, as well as people trying to search for facts about Prader-Willi on this blog, i.e. “Why are those with Prader-Willi always hungry?”
Firstly, thanks for reading, watching and commenting. It is great to know that my posts are being looked at by others. Also, I welcome any sort of feedback, be it negative or positive. Feel free to email me at firstname.lastname@example.org.
I wanted to provide some resources on Prader-Willi that I’ve found particularly useful. I hope this will help those who want to learn more.
This is by far the best source on Prader-Willi Syndrome, and includes basic facts, personal stories and events. If you or someone you know is trying to find a psychiatrist/physician who treats Prader-Willi, use the site’s search tool.
This is from the Prader-Willi Syndrome Association’s website, but I wanted to highlight this because their site can be a bit hard to navigate. The above link is a question and answer page about the syndrome.
Cutting-edge research and treatment options for those with Prader-Willi: a must for those with Prader-Willi or for those who know someone with the syndrome.
This British documentary takes an in-depth look at a clinic that serves Prader-Willi patients. It’s pretty informative and definitely pulls at your heartstrings. But, the film tends to overgeneralize and sensationalize the syndrome by failing to acknowledge that this is a spectrum disorder. Not everyone is this extreme. That said, I think this is worth a watch if you are interested in Prader-Willi. It’s 47 minutes long, so make sure to set aside a chunk of time.
And because I got so many hits on the slideshow, I wanted to include the stills from it. Enjoy, and thanks for reading.